Hi Friends,
Thanks to all of you for your emails and wishes over the last few days. I'm feeling better on this round of Taxol because we now have a better sense of what to expect. I started taking the Tylenol 3s sooner, knowing that when the growth hormone pain adds in tomorrow I have the Percocet to manage all of that. Last time I was afraid of maxing out and running out of options over the weekend and stubbornly resisted taking the full amount (against Catherine's better advice). This time, however, it feels like we have pain management covered.
I can't tell you how much better this past Thursday went over the previous round. Catherine had all of the bases covered and looked like she was moving in when Julie dropped us off at the hospital. She brought my fave cozy blanket, a beany bag to warm my feet, a pillow, and attended to my every need. Once the Taxol started, these needs were significant. For instance, around noon Catherine went down to the Druxy's downstairs and got us each our "usual": a delicious grilled Swiss cheese on challah bread. We have this every chemo day. The only problem was, with my nails on ice this time, I couldn't feed myself. (Several of you emailed asking about this process, so Julie took a photo, above. The bags have pockets in the back where you slip your fingers in so as the ice melts your nails are protected. You just look like you have lobster claws. The design is quite clever.) So Catherine fed me my lunch and people around me were commenting on how lucky I was to have such support. So true.
Catherine also encouraged me to start with the pain medications before the infusions started and this also made a huge difference. Not having that nasty pain for the 6 hours really made it more bearable.
I'm pretty tired today, and about ten minutes ago Tito started to burn. I'm going to have a rest now and just feel this illness leave my body.
Much love,
Kip
bye bye tito....
ReplyDeleteand how about saint Catherine
ReplyDeletehow are you?
What are your favourite things?
Can we scatter them sweetly
on you while you rest?
I'm deeply moved by what you do
Holding down a world
stepping up and being there
I'm awed by the strength
the steadfast absolute "I'm Here."
God I love that.
It's how we're here
and families are formed
living fulfilled in the service
of those that we love.
This is a children's poem to add some whimsey to what has moved into your house. At the end of its stay, it WILL go away and leave you alone! I believe this.
ReplyDeleteLove, CLR
The Visitor by Jack Prelutsky
it came today to visit
and moved into the house
it was smaller than an elephant
but larger than a mouse
first it slapped my sister
then it kicked my dad
then it pushed my mother
oh! that really made me mad
it went and tickled rover
and terified the cat
it sliced apart my necktie
and rudely crushed my hat
it smeared my head with honey
and filled the tub with rocks
and when i yelled in anger
it stole my shoes and socks
that's just the way it happened
it happened all today
before it bowed politely
and softly went away